JISC

Patients Participate! will investigate the potential of crowdsourced “lay summaries”, derived from UK PubMed Central content, to enable the citizenpatient to better understand research. Having free access to the scientific literature enables citizen-patients to participate in the research process but, in practice, they tend to be overwhelmed by the volume and complexity of the literature. Whilst many medical research charities provide lay summaries, evidence suggests that academics struggle to describe their work in a way that is accessible to all. The feasibility study will gather stakeholder requirements, run a community consultation Citizen-Patient Workshop, assess usability of existing citizen science platforms and develop three Citizen-Patient Use Cases. The project will also produce Advocacy Guidance for academics (via DCC) and for citizens (via BL and AMRC), to facilitate engagement in open and participative (P4) medicine and health science.